DANGER DRUG RECALL

As it turned out I actually did get the bad batch of re-called fentanyl pain patches. the company is SANDOZ manufactured by ALSA and the information should be available at your pharmacist or google it online. What pisses me off is that I got an email from a friend last week about this recall and the pharmacy just received the note from the drug company. I have been experiencing symptoms and have not been feeling good for two flipping weeks which is most likely from this malfunctioning patch. It was slowly leaking out and could have had an overdose or died of a heart attach. My symptons have been extremely bad itching everywhere( and I mean everywhere). So please pass this along if you know anyone who may be on this medication. if I were the kind of person to sue I would. Not because they made a mistake but because my pharmacist even inquired about this and was told we did not get the re-called item. They are willing to give all patients who got this a free replacement. Man I am so over the drug companies, but I am at a loss for other pain control. Yes I meditate, breathe, creative visualizations, yoga, acupuncture, craniosacral etc....What is a girl to do?I am tired of living with extreme bone-joint-muscle pain due to lupus and long term effects of drugs which save my life. Now I am just venting. I will be the enlightened being I know myself to be and forgive and move on. Thanks for listening. I will write a letter to the company though.

Thought for Thu, 21 Feb 2008

Thought for Thu, 21 Feb 2008
Buddhism has the characteristics of what would be expected in a cosmic religion for the future: it transcends a personal God, avoids dogmas and theology; it covers both the natural spiritual, and it is based on a religious sense aspiring from the experience of all things, natural and spiritual, as a meaningful unity. - Albert Einstein..

Today I pondered the wonder I saw last night as the full moon went into eclipse. The power of the pulling forces from the sun-moon are intense in so many ways to me. I feel them in my emotions, which we now know is actually a gravitational pull on the fluids(blood) in our bodies, which can cause the emotional part of the brain as well as other parts to feel "pressure" and makes us act a little strange, have weird dreams, feel strange sensations, be emotional or even angry. This past week I have run the gamut of emotions after many little "problems" which I only viewed as "imposed" problems. These every day events do not actually shape who we are, they are little blips reminding us of what is truly important. The eclipse of the full moon made me realize how small these little problems are and how insignificant is the energy on which I place in them.

I decided today I will deepen my meditation-yoga-balance practice. I do not practice daily as I should or as long as I should. I say "should" because I know the profoundly positive effect this has on my well being and in keeping lupus at bay. I may not be able to grow back bone where it is gone or kidney tissue where it is hardened, but then again maybe I can? Miracles happen every day. I felt such a sense of this reality and peace when receiving acupuncture from my friend and Dr. Cissy Majebe. She has been treating me for 20 years. I first saw her when I was in a coma in the hospital in 89 with little to no pulse. They said I was dying. After a treatment and many prayers I lived. The drugs and other forms of healing: acupuncture, mediation, being quiet, listening, resting, swimming, yoga, gardening, reading, breathing and walking in nature all help me heal. Cissy has always been a rock for me in helping me remember how far I have come with the tool bag I acquired. I watched her keep her mate alive for five years with acupuncture-herbs and western medicine while waiting for a transplant. She is doing well after her new kidney was placed into her fragile body. Long term effects may never go away but the memory of the miracle in life is always there if we chose to remember.

So I place my resolution out there to the ethers and whoever still reads this; I will walk tall even if in a wheelchair and I will see no limitations only balance. I am grateful for all the teachers along the path who have inspired me. Some will never know how much they have touched me. I DO.

good news

the pharmacist, whom i love, emailed to tell me after researching found out i was not taking the malfunctioning patch and she did not order from that batch or wholesaler and all is good except i am having a major itch reaction and can not just quit taking it, as with any opiate. i really feel i am immuned to drug addiction in that sense but i forget that all opiates have a chemical addiction. just because i am not dependent on it emotionally and can stop taking it whenever i decide, it only shows my will is stronger than that chemical reaction the body feels so strongly. i sometimes have thought i was immuned from chemical or any dependency and in my mind i am (except for chardonay). the fact is that with any medication one needs to slowly stop instead of abruptly stopping. i learned a lesson i have had to learn many times as all chronically ill people do. sometimes we get very sick of all the medications, treatments, illnesses, side effects, social ramifications and all that goes with being with a chronic and sometimes life threatening illness. with that i know i need some rest this week.

the large buddha in our apt. is the best healing mode for me now !!! i meditated with it for an hour and felt so relaxed.

difficult few days plus year and half?

after i posted last time i lost half of my computer files which consisted mostly of a book i have been writing and compiling info for. long story but i even tried to back up and did something wrong or the device was messed up who knows. i was able to retrieve half after a computer guru worked on it. i cried when i felt the incredible loss of all the recordings i made on digital recorder of my grandparents, douglas, dr's, friends, family and me for the book. i had letters, poems and many emails which were touching and inspiring all to be a part of the book. i guess one has to learn not to be so attached to certain "things".

then today found out why i had problems with the pain patch and problems after taking it off. there is a recall on them after many people reported issues. the plastic had a slow leak in some instances which would leak the opiate onto skin and perhaps caregivers as well. the itch, flu like symptoms and tiredness was probably related and when i stopped suddenly i could have had a heart attack due to opiate withdrawals. i was under the impression i could stop taking them. i learned a huge lesson or many lessons this week. it is always something. i also get frustrated being away from home where all our files and stuff is located. i find i am looking for information which is in a file there or forgot a nice rain coat or a pair of rain boots etc. just the comfort of being at home is strange. i also see the cup half full, don't worry, i am not losing my positive attitude simply being human for a moment. all in all the emotions of many months and even past 1.5 years is being felt.

my funny valentine

Douglas really out did himself this year. I was surprised by a lovely "Angel Food" candle, gorgeous flowers and a dinner out at a small restaurant on the 13th..(always ahead of our time). Then on 14th he said we would go by the hotel project to check on things and lock up and he had a surprise. We ended up on top of a friends building in downtown with the best views , and one of the highest, in the city. I was so happy. We watched the sunset with a bottle of wine us three and watched the sky go form pink to dusty purple-grey then dark. The funny thing is this friend and his wife ended up buying mine and mark's old store " A Far Away Place". It is a small world. Then we came home for a healthy dinner I made for him with yams, greens and chicken in butternut squash sauce. What a great day. We even treated ourselves to two vintage coats from a small thrift shop and two funky old tables that need some love. You know I love my mid century modern tables and chairs. I might use them in hotel but they will look great at home !! What a splurge. Then it was back to the computer.

All is coming along on the projects. The miles building exterior remod is turning out to be rich and opulent with these lovely iridescent tiles and the copper colored awning. Doug's copper door will be the cherry. The hotel is getting more complicated with HVAC and elevator. Now he wants solar on the roof too for hot water and a cafe will be coming soon too. It could be next winter before it is up and running. Today we are having our weekly power design meetings. I am excited to be on the conceptual and design end from the logo, branding, signs, menu, purchases etc. I have learned so much and even wrote the business plan for the hotel which was a real challenge but is good. Our client has placed enormous trust in us, especially Doug. I have the lucky job of mostly being on the computer, phone or in the home office. For the first time in my life I even have carpal tunnel in left hand. Doug walks from job to job and back to office four times a day.......but he loves it.

I stopped the pain patch and had a rough week with getting pain under control ,fatigue,itching and walking on sidewalks does not help bone pain on those little fractures(infarcts througout body) or joints. The yoga class really stretches me too and I hurt but we are trying to use milder forms of pain management. So far it's not working so well. I guess itching is better than being in pain. When it starts to keep me in bed or down on the couch for two hours every afternoon(like past week) and keeps me form going out walking, then I have to ask myself "why not use opiates if they help?". I met the Dr. down here and I like him. I still go to my acupuncturist every week and make stinky tea with dragon drool and bug butts, but it seems to be useful and I always come home and have the deepest sleep after a treatment. I guess the past two years has played havoc on my nervous system being in pain and always on guard. This helps me rest and helps with the pain. The gas is another story for another day. Chinese herbal tea is known for it's stinky side effects; while cooking and after ingesting. Just ask Doogie. All in all I feel stronger and look better-healthier every day. I even gained a couple pounds and muscles.
I find time at night to read and almost done with 500 page "Einstein". fascinating read.

For all you friends and family that check this out I love you and thanks for caring !!!! I know I have not contacted many friends while in Asheville but I will as time and energy allows. I only have so much social energy to give and lots of people with whom I want to share our friendship.

Namaste

where is the real winter?

Here in Asheville there has been cold weather with lots of wind but where is the snow? People are so concerned about the lack of precipitation due to summer drought and winter sunshine? I have to admit I miss Michigan snow at times. It is just natural. The seasons need to be. The why is always up for debate yet obvious to everyone who wants to accept it. The answers and solutions are available but so far in the future for implementation. Hang in there folks.

All is good here yet at times we both feel our brains being stretched to their limits. It is always good to challenge the brain matter but I have learned the balance is good too. After all work is work.

I took my first yoga class here for special needs. Most have MS. I have known the teacher for 20 years and she is wonderful. I have to get used to new ways of doing her style. The class in Ann Arbor is very different. It is the same with almost everything. The meditation temple is better for me here, yet the food costs are much much higher. Trade offs.

Off to visit family tomorrow and really looking forward to it. I hope you are all well and happy. A