Feeling the pain of more activity and pt

Yes I am now experiencing the pain of being back on my feet and in activity in life and in pool PT 3 times per week plus daily exercises. I am moving slow due to necrotic bones, failing right hip replacement (in need of replacement) and need to keep the inflammation low. I feel good other than severe seasonal allergies, low blood counts still and pain at night I can not control due to inability or willingness to take toxic pain meds. I have a bad reaction to everything now. This happened after the recalled "bad-leaking pain patches". I have tried natural, pharmaceutical and mind-spiritual practice yet at night sometimes the pain comes back in bones, muscles and joints and is not something I have been able to control at times. It had been good up until lately due to my lack of activity for almost 3 months. I spent two months in "bed" and hospital with high dose antibiotics after surgery and now I am doing more activity with Douglas being gone and PT kicking it up a notch, which is now starting to hurt and swell them old bones. When I try to bed over in the garden it is like an 85 year old with severe arthritis. Then the mechanical pops, cracks and other sensations makes it difficult to do too much in fear of doing more damage. I am determined to live a quality life no matter what; yet I AM conscious of making the good choices and how my decisions affect others who care for me. So I am taking it one day at a time. Each day very different. My white count is low too which adds to the low bio. I have to draw more blood Thursday. So that is my reality at the moment. feeling good but have faith in feeling better. None the less I live my life for which I am grateful.

Tomorrow is an important day for the UM Lupus Program and Dr. Joseph McCune. We are having a university inauguration to honor him and give he and his team an opportunity to focus whole heartedly on finding a cure, better treatments and patient care. I am blessed to be a part of this. My mom was one of the first lupus patients at UM hospital. She knew briefly McCune when he was a resident. My family is in debt to him for his care over the years. I am a volunteer for this program as an advocate and fund raiser to show support for future generations. My Father will be my date and it will be a very emotional event considering my dad spent many years with my mom as she was an ongoing patient. She spent a year plus as a full time patient with weekend passes. What I remember is the long hall leading to her room and the view of the Huron River and city scape. I also remember the cafeteria made her special bread. I also remember Weber's Inn when the family visited and we swam indoors and had a moment of fun in the middle of hell. So a mile stone is made tomorrow and very appropriate we will be there. They have written a brief bio of my journey with lupus for their brochure. I am humbled once again.

My friend brought by some plants for the porch she wants to keep here till August and they are lovely. I feel very happy !!!! I hope you are all reading this and knowing how blessed you are. Feel it and give thanks. Life is precious. You are precious. All is well. So be it !!!!