Tuesday, October 20, 2009

care and feeding of me.....angela (under the influence-d)

hi! ya'll. thank you for the light, prayers, good vibes,calls,emails and cards sent our way. i am doing great and waiting for a brace to be made for me to wear 8 weeks while moving about and then tonight i can start mild pt. still have a "port of sorts for IV steroids and antibiotics until the blood culture comes back. i am still with pe-pe catheter but bathed, sheets cleaned and well fed and watered. doug slept at the med-inn here at the hospital which is convenient and one step up from motel 8 yet just down the hall so he attempts to sleep and geek.
all is good in the slammer.

my surgeon, dr. blaha, said the bone which died(disappeared) behind the prosthetic acetabulum was filled with calcium fluoride and calcium phosphate.better than the old cadaver bone they have used in past surgeries. he said the only way to know if it grows bone is in 6 months doing a CT scan but we both agreed not to do one due to too much radiation....the old glow in the dark trick. if it starts to loosen or hurt we will know it did not work, in which case they would redo the ball or i could keep the whole kit and kabuttle for years.

i asked if we could inject that into the knees, left shoulder and other necrotic areas where bone has died. he said there is one surgeon at St.Jude children hospital down south and they have only tried it in 100 people, two who he sent there from here. he said the results may not have been worth the cost and effort. he still wants to hold off until it hurts so much it is debilitating (some days they do) but we decided no more surgery until the hips have fully healed and then we would try a more conservative approach called drilling which can stimulate growth naturally by making holes in bone where osteometabolism would naturally do it's thing. i have one before but it was for the hip and i was too far gone. the knees still have a fighting chance (all good). the various spots on other bones do not seem to be of concern and i have actually started bone growth even "they" said it would not happen. these times they are a changing.

doogie will keep you posted as i go in and out of lala land and a knows at the door by some hospital staffers every fifteen minutes while beepers are going off. please do not call unitl i get home. crazy little room and doogie has computer-phone in some zones. plus it seems like the dr.'salways come in when the phone is ringing. this is the best from of comunication unless you want to visit then call ahead. my room number phone is 734-936-5409.

nina you said you wanted to bring food-juice? i do have some cravings......so you can call me. zingermans chopped liver-matza ball soup,co-op kale,salad,mashed sweet or regular potatoes, winter squash, plain baked tofu or savory with miso giner/garlic and roast chicken and anything home cooked from produce station is on radar for anytime. maybe when i get home..........or here too. carrot-ginger-green apple-lemon-beet juice always great ! i will remburse. but do call first as meals are strange here and never know when they come or what to expect. thank you for the book. i know i am a butt head.........but i am your butt head !Private joke.inspirational stories.

much love to everyone and know you are all in my prayers and heart.

love
angela ( aka robobabe ) i love my hubbies humor and is wonderful !