Thursday, September 3, 2009

The sun also rises

Today is the first in a six series lupus education-support program at UM Hospital coordinated by me and retired Dr. Dale Dedrick who also has lupus. I cried last night because I was so moved by the phone calls and emails from patients and parents of youth who have been diagnosed who are not only coming, but 6 from Flint! This warms my heart. All it takes is helping one person and paying that forward. Three of the Dr;s-researchers will speak about advances, research, our clinic and more. The next three will be taught by Dale and I. The last two by a PT, Beth Wiggert and Nurse Claudia Ogden. Attached is a flyer for those of you desiring to come. I am so happy years of hard work paid off and people kept saying I would never get into the UM hospital system with out a medical degree. Showed them.

Still in small flare and laying low. I am a bit weak, fatigued and shaky. Doug busy too but well.

University of Michigan Lupus Education and Support Program

The Fall Series of the University of Michigan Lupus Education and Support Program begins September 3, 2009, from 6:00 p.m. to 7:30 p.m. at the University of Michigan Health System on the 3rd floor of Taubman across from Reception D in the offices of Internal Medicine, Kelly Conference Room. Follow signs.

This series will be on the first and third Thursdays from September 3rd to November 19th intended to provide educational information and support to patients and families with Lupus.

Some of the topics included during this program include:

  • Sept. 3rd: "Lupus 101-The Basics" Dr. Dale Dedrick and Angela Madaras, Lupus Program Coordinators: Speakers include: Dr." Joseph McCune, Patricia Cagnoli and Wendy Marder from The U-M Lupus Program-Clinic.
  • Sept. 17th "Best Daily Life" Dr. Dale Dedrick and Angela Madaras, Lupus Program Coordinators. Positive tools for living a full-balanced life.
  • Oct. 1st "Avoiding Flares" Angela Madaras and Dr. Dedrick.
  • Oct. 15th "Living With a Flare" Dr. Dedrick and Angela Madaras.
  • Nov. 5th "Exercise for All Levels of Activity" Physical therapist from the U-M Spine Clinic, Beth Wiggert.
  • Nov. 19th "Stress Management" U-M Holistic Nurse, Claudia Ogden with UM Lupus Clinic. Dress comfortably.

Registration Fee:

There is no registration or fee for participating in this program. Snacks and drinks will be provided at the first and last meeting; however, participants can bring food or drink with them to the program. A peer-support meeting is encouraged for participants who want to continue the meeting at the U-M Cafeteria after the sessions or on their own.

Parking:

Parking is available in Taubman Center Lot A at the U-M Health System where participants can enter through the elevators to third floor or through the main entrance with signs directing to the room. Valet parking is available at main entrance for $5.00. Wheel chairs are also available at main entrance.

For more information please contact Angela Madaras at (734) 761-9267, by email at angelamadaras@gmail.com, or on the web at www.med.umich.edu/lupus.

Please sign the attendance list before you leave and include contact information and your address-email if you wish to be on our mailing list. In the event the classes get too large and need to move to another room we need a way to reach you by phone or email.