I am the second Daptomycin IV and all seems to be tolerable. I just get a little tired and some muscle weakness and soreness. They keep an eye on muscle enzymes and all symptoms. I think this one will work out just fine. It's just a half hour-45 minute infusion or and hour if I need to slow it down. Nap afterwards and all is good. Let's hope this is the miracle drug for the bug. They may have me take an oral for a few months as well once we are done with the heavy guns. I also read about oral hydrogen peroxide and clove oil as good antibiotics for this type of infection. I will look into all natural prophylaxis.
Yesterday at the infusion room everyone was so nice and welcoming. The Dr. on call for McCune, Dr. Patricia Cagnoli, who is very well respected as an associate director and instructor in the UM Lupus Program and Internal Medicine, came by to check on me while he is out of town. She was very warm, sensitive to Doug's concerns and thoughtful. I appreciate Sue Olsen RN and Dr. Gandhi as well who both work in ID. Sue called to wish me luck. You see all this is the human component which makes the process of being a patient so much easier to handle. My home nurse Elizabeth is great as well.
Gotta go IV running out. Thanks for checking in on me and Doug and know you are all in hearts and prayers daily. I realize there are many others who are going through trying times. To all of you who are we wish we could help more.