Thursday, November 12, 2009

I'm Free !!!

I am officially free form home nursing which means I can go out for breakfast and grocery shopping with my hubby and I can start PT next week, if they can squeeze me in. My therapists schedule's are booked. I may have to see a new therapist for a week or so. I have six weeks of PT with leg brace and walker.

Today Douglas and I got up not so early, went for breakfast to a diner that has a Mediterranean dish with eggs-spinach-feta-tomato-cucumber and olives "pit in" served with pita and they have very good hash browns and corned beef hash. Cheap too !! So we ate and ran errands, had to give blood for labs(twice a week now). We went to Trader Joes and Meijer's and bought a van load of food staples and some prep for holidays. I think we were gone for 4 hours. I was so happy to be out and about. I wore my mask at the lab and used a ton of anti-bacterial lotion. Do not want to get sick. I forgot how much I love to grocery shop and how patient my hubby can be when I drag him along. He is not a shopper. So all went quite well and I feel like I took one huge step towards freedom. Maybe next week I will attempt to drive? Only after PT tells me I am able.

I want to share a new and very hopeful drug to be on the market soon, we hope, for lupus. It has gone through three trials using humans and is now waiting to see if it can apply with the FDA as an approved treatment specifically for Lupus. It would be the first drug for lupus that the Food and Drug Administration (FDA)would approve in 2010—in more than 50 years. Right now only steroids and aspirin(which is rarely used for severe lupus) are approved. Other treatments and medications are used for lupus but not FDA approved specifically for the disease, therefore always considered experimental. Cellcept, Imuram, Plaquenal, anti-inflammatory meds of all sorts and Cytoxan are used to treat the disease, yet are not FDA approved. This creates insurance issues,not to mention they are cytoxic immunosuppresives which create huge risk of infection and long term devastating side effects. To have one future medication targeted at treating lupus is a huge mile stone that I knew I would see before 2112. I have participated in trials of similar medications which did not cut the mustard. This looks very promising. Check this site out....http://www.hgsi.com/latest/human-genome-sciences-and-glaxosmithkline-announce-full-presentation-at-acr-of-positive-phase-3-study-results-for-benlysta-in-systemic-lupus-erythema.html

Enjoy the evening !!!!